ObjectiveTo investigate the status quo of self-perceived burden and self-management behavior among enterostomy patients, and explore its relevant influencing factors.

MethodsA total of 170 patients with enterostomy from stoma outpatient department of three tertiary grade A general hospitals in Shanghai were investigated using the general data questionnaire, self-perceived burden scale and self-management behavior questionnaire, and the results of survey were analyzed.

ResultsThe total score of self-perceived burden(27.29±0.66) points was at a mild level. Among the three dimensions, the highest score was the physical burden(2.88±0.06) points, followed by economic burden(2.12±0.10) points, and the lowest score was emotional burden(1.92±0.06) points. The total score of self-management behavior(113.97±13.90) points was at a high level.The scores of the psychology, symptoms, information, ostomy nursing and daily life of five dimensions were(4.27±0.04), (4.11±0.05), (3.85±0.05), (3.72±0.06) and(3.27±0.07) points, respectively. The total score of self-perceived burden was significantly negatively correlated with the total scores of self-management behavior, symptom management and psychological management(P < 0.01). The self-management behavior, marital status and caregiver health status were the main influencing factors of self-perceived burden among enterostomy patients. The level of self-management behavior had no mediating effects on the impact of marital status and caregiver health status on self-perceived burden.

ConclusionsMedical staff should pay attention to maintaining the mental health of patients with enterostomy, and improve the quality of life of patients by improving self-management behavior and reducing the self-perceived burden.